Welcome to the first-ever PANS/PANDAS Awareness event in Vermont! Join us for a 5K fun run and walk along in Burlington on October 12, 2024 to raise awareness for PANS/PANDAS here in Vermont—an often-overlooked autoimmune disorder said to affect 1 in 200 children.
We’re calling on our amazing citizens of Vermont to join us in raising awareness and making the first steps towards change and healing.
What are PANS and PANDAS?
PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections) occur when a child’s immune response to an infection causes inflammation in the brain. The inflammation can cause the sudden onset of behavioral, neurological, and personality changes. The effects of PANS/PANDAS on children and their families are devastating—yet these conditions are still relatively unknown in Vermont, making diagnosis and treatment extremely difficult.
A note from Gaskell family
As a family of 5 living in Burlington, Vermont, we’ve endured the hardships of PANDAS and are rising up from its ashes to bring awareness. In September 2022, at age 8, our son, Enzo, experienced a sudden, acute onset of extreme neuropsychiatric symptoms. As his parents, we sought help from doctors, psychiatrists, and local resources but to no avail; Enzo’s condition continued to spiral. Thanks to one of Enzo’s former teachers, who witnessed our struggle and had read about PANDAS on Facebook, we got a first glimpse of what could be happening. In June 2023, a clinic at Dartmouth Hospital diagnosed Enzo with PANDAS. Since then, treatment and recovery have been long and arduous, however finally—now almost two years later—Enzo’s condition has stabilized. With a bit of blue sky returning for our family, we’ve emerged with a clear mission: to help others living with this devastating condition.